Thursday, March 28, 2013

Here we go again

We didn't get the news we were hoping for today. The CT scans showed multiple lesions in the lungs and one lesion in the liver. The one in the liver is measuring about 1.2 cm. They are classifying this as stage 4 since it has metastases from the bladder and is being considered large cell neuroendocrine carcinoma. Since it is stage 4 it isn't curable, just treatable. As of right now I am the first person Dr. Seifker has seen with this type of cancer, so add that to my list of being different and difficult!

I will hopefully start chemo next week at home. They have me doing cisplatin and irinotecan one day a week and then two weeks off. I will go through three rounds them head back down to Houston to repeat scans and an MRI to see if the lesions in the lungs and liver have responded to the chemo. They will also see if the lesion in the brain responded to the Gamma Knife. If the spots in the lungs or liver haven't responded then we will switch up chemo. If the spots in the brain haven't responded then our next step with that is full brain radiation.

Once again I am at a loss for words. I don't know what to do anymore. We have been doing everything they have told us to do and nothing seems to be working. I feel like this awful thing is taking over and I am scared to death. I am scared of one day waking up and being helpless or in so much pain I can't do anything. I am just scared of all that is to come. I thought I beat this one time but here comes another fight and it isn't going to be as easy as the last.

Kyle and I changed our flight to tonight instead of staying until Sat. I am ready to get out of here and just be back home with family and friends.

Love,
Jeryka

6 comments:

  1. Jeryka I am so sorry you are going through all of this. Our thoughts and prayers are certainly with you and Kyle as well as the doctors who are trying their hardest to find the best route to beat this! Keep on fightin', girl!!

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  2. Do not be fearful because you are not alone you have the love of a good man, your family and friends.

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  3. I am so sorry honey. You are a strong woman and I am praying for your comfort and most of all your healing. I'm sorry. I love you!! Tina

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  4. Hey Jeryka...I am a friend of your soon to be in-laws...after reading your blog, it is very apparent you are a very strong young woman and I know that between your strength and all the love and support you are receiving from family and friends, you will persevere...I will keep you in my thoughts & prayers...

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  5. Praying for you. You are such a strong woman and can fight this!! I just got my bracelet in the mail today.... Fight like a girl!

    XO

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  6. Jeryka
    My prayers are always with you. I have neuroendocrine cancer and it is a breeze in comparison to what you have been through. Praying that it is a slow growing cancer as mine is. Any questions please call me at 913-710-6093 and I would be so happy to talk to you.

    Love always
    Julie

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