We didn't get the news we were hoping for today. The CT scans showed multiple lesions in the lungs and one lesion in the liver. The one in the liver is measuring about 1.2 cm. They are classifying this as stage 4 since it has metastases from the bladder and is being considered large cell neuroendocrine carcinoma. Since it is stage 4 it isn't curable, just treatable. As of right now I am the first person Dr. Seifker has seen with this type of cancer, so add that to my list of being different and difficult!
I will hopefully start chemo next week at home. They have me doing cisplatin and irinotecan one day a week and then two weeks off. I will go through three rounds them head back down to Houston to repeat scans and an MRI to see if the lesions in the lungs and liver have responded to the chemo. They will also see if the lesion in the brain responded to the Gamma Knife. If the spots in the lungs or liver haven't responded then we will switch up chemo. If the spots in the brain haven't responded then our next step with that is full brain radiation.
Once again I am at a loss for words. I don't know what to do anymore. We have been doing everything they have told us to do and nothing seems to be working. I feel like this awful thing is taking over and I am scared to death. I am scared of one day waking up and being helpless or in so much pain I can't do anything. I am just scared of all that is to come. I thought I beat this one time but here comes another fight and it isn't going to be as easy as the last.
Kyle and I changed our flight to tonight instead of staying until Sat. I am ready to get out of here and just be back home with family and friends.