We headed to Oklahoma Friday afternoon and about half way there I get a call from the scheduling nurse at MD confirming my appointments. I had asked if there was anyway she could move my CT scan to later in the day. It amazes me what a little effort and willingness to help someone does. She was able to move the scan to 12:40 on Sunday unlike the last nurse who refused to even look at moving it. So this meant I could stay for all the sessions on Saturday and fly out early Sunday morning. So I changed our flights once again, canceled Saturday night with the hotel and car. At this point I was pretty sure I would be red flagged at the airport for all the changing of flights I just did in less than 8 hours.
We had a lot of fun in OKC and all the girls did really well. Friday night we got to watch a NCAA session between Oklahoma, Alabama, West Virginia, and Michigan.
|I scored a 9.925 on vault for West Virginia!|
I saw the neurosurgeon at 8:30 Monday morning with the results from the MRI. I wasn't real nervous for this appointment but its still stressful. I wish every doctor would do what this PA does. As she is opening the door to come talk to us she tells us everything looks great and nothing showed up on the scans. And then she sits down and asks all her questions and does her examination. This is so nice because she doesn't make us wait for the results and doesn't try to have a conversation before she tells us anything.
I was scheduled to see the oncologist with the CT scans at 10:30. We didn't get called back to the room until 11:30. Lets say I wasn't real happy at this point. Its just frustrating to have to wait so long before you are even called back. We had to wait another 20 mins in the room for the doctor came in. Then she comes in and wants to know how life is and then wants to do the examination, ask about the wedding and honeymoon. At this point I don't want to talk about life, I just want the results. After you give me those I would be happy to discuss anything with you. I already had to wait over an hour to see you, so just tell me the results.
These results were just as good as the MRI. Everything is stable if not slightly improved from the last time. The one spot on one side of the liver doesn't even show up, the spots in the lungs are barley recognizable, and the other spot in the liver is way improved. This was such a huge relief.
Now the plan is to repeat a CT scan in 3 months and an MRI in 6 months. I am hoping everything continues to improve.
I need to send prayers to a special person who starting this crazy journey. Stay strong and you will have so many people beside you fighting along with you.