We went to NIH a couple of weeks back in hopes of starting the trial. But after doing every type of scan they had we found out there is a new small spot of the brain which eliminated my from the trial as of right now. I am not sure why there is a spot because that is why we did full brain radiation and full brain radiation was suppose to kill any and all spots that may be presents in the brain. Obviously it missed one. So now we are waiting for MD to look at the scans and decide if doing Gamma Knife to that spot is an option. Or to tell us if this is a spot we should even be worried about. If I do end up doing radiation again I can go back to NIH two weeks after and hopefully start that trial or maybe even a different one that may end up being a better choice. MD just got the scans and reports last Wednesday so I am hoping I hear from them really soon. The longer it takes the longer I have to wait to start this trial. So let's jusy say I'm getting impatient.
The scans from NIH showed an increase in the size of the tumors in both the liver and lungs with a couple of new spots. There was a suspect spot on the iliac bone. The bladder still looks good along with my kidney and liver function. I am still in some sort of pain each day either in my rib area, my back, my chest, or all three but my energy level continues to increase. Sleeping at night is still questionable but I usually make it up from about 7 am to 10 am.
On the other hand I am going to be adding breast milk to my diet. There is a current study out there that states breast milk helps with liver and lungs cancer. Which I currently have spots in both of those spots. No, I won't be buying breast milk off the internet from a stranger or from the person standing on the corner. I don't need any extra "stuff" floating around in my body. I will definitely let y'all know how it is after I get a chance to try it.
I have been staying busy with work and racing. Racing season is just about over and meet season is just about to start. So I really don't have too much time to sit around and worry. Not saying I don't by any means but as long as I keep myself busy my brain isn't usually allowed to wonder to the "what ifs" that are constantly in the back of my mind.
Love,
Jeryka
